Saturday 27 September 2014

3 Month update

I can't believe how fast the last 3 months have gone. Harper is no longer my little newborn baby. She's now smiling away and can even roll from her tummy to back. She's starting to hold her head really well too - all milestones that I am so proud of as we were told throughout pregnancy that she would probably be slower than other babies.

Harpers doing okay weight wise, but it has been very up and down. We will have days where she'll finish most of her feeds, but then others where she can only manage a few ounces. She weighs 10lb 7oz and is following the 25th centile although she has started to drop down below it. We are going to see how she does in the next couple of weeks and if she is still struggling the GP will talk to us about putting her on a high calorie formula. 

She's growing way too fast, I put a 3-6 month sleepsuit on her a few days ago and I'll probably be lucky if she gets another wear out of it! I can't believe I'm having to by 6-9 month clothes already.

She is so much like Teddy, not only her looks but everything she does..you can defiantly tell they are siblings. Ted loves her so much and Harper's even started to try and talk back to him.

Here is the first picture of them both together, pulling the same face!



I thought I'd share some pictures of her from the past month, you can also follow me on Instagram where I post more often, search for MissCharLouise xxx






Thursday 18 September 2014

GOSH Outpatients Aug/Sep

I haven't posted in ages, mainly because I've been struggling to deal with everything and couldn't face writing it all down. 

At Harpers first GOSH appointment back in August we didn't get the news we had hoped for, we were told to expect her to need surgery within the next few months and when I asked about her life expectancy I was told she would 'hopefully go to school'. They told us they were going to discuss Harper with the other cardiologists that evening and would give us another appointment in a months time.

When we went to the follow up appointment last week I had prepared myself to be told she needs surgery now and had to hold back tears in the waiting room. We were called in to the ECHO room and saw a different consultant. He explained that there was some confusion over some of her veins, as her condition changes the place of everything in the body. He said they would need to be clear where they all where before they could operate. 

Once he had finished the ECHO he had a huge smile on his face & told us he had good news. All her veins are in the correct place and doing what they should be. That wasn't all - the hole between the bottom chambers has completely closed, there is no rush to do surgery now. 

I have never felt so relieved, although I know there will be a time that she does need open heart surgery, it's not right now. GOSH don't even need to see her for another 3 months as she's doing so well.

It looks like we will get to spend Christmas all together, something I'm looking forward to more than anything. Although it's still months away I've already started my shopping and looking for new decorations as everything was really rushed last year because we had only moved in to our house at the end of November.