About Me

I've decided to start this blog to share what it's like to go through pregnancy and have a baby born with a CHD.

I am 24 and live in Kent with my partner and 16 month old son. We are due to have a little girl on 2nd July 2014 - she will need at least 1 heart operation which will take place at Great Ormond Street Childrens Hospital. The condition she has been diagnosed with is called Left Atrial Isomerism, but is better know - especially in America as Heterotaxy Syndrome

I have found it really hard to find other parents that are going through the same and there is hardly any information about our baby's heart condition & others online. Hopefully my blog can be of some help to other mums and dads that are going through something similar. It will also help me to write everything down as it sometimes hard to talk to family and friends.

I will update this blog as often as I can, especially after scans and appointments - and of course once our little girl is here.

Thank you for taking the time to read this, it really means a lot.

Char

XxX