We have some news - finally!

It seems like we have been waiting forever but Great Ormond Street have given us some news on Harper's upcoming open heart surgery.

We have been waiting for the cardiologist's to come to a decision on whether Harper should have her heart repaired now, or if it should be left until she's slightly bigger. 

They have decided she will have surgery in 4 months, I have to wait for a letter with an exact date but it will be sometime around May. GOSH will next see her for an outpatient appointment in April, this will be our chance to ask any questions about the surgery.

In a way I'm glad, the bigger she is the easier the surgery will be..it also means I've got quite a while to get my head around it. On the other hand May is the month before her 1st Birthday..we have no idea how long she will be recovering for..just to expect to stay for at least 2 weeks. I'd hate for her to have to spend her Birthday in hospital..but GOSH know what they're doing and that would just have to be something we would deal with...

7 Month update

 Harper turned 7 Months old on the 21st, time is really flying! I can't believe she's got this far with no surgery, she really is our little fighter.

She's been teething for months now but there's no sign of any teeth, she bites on anything she can get her hands on, her Sophie La Giraffe teether is defiantly her favourite toy at the moment.

She is rolling around loads and we've had some attempts at getting up on her knees ready to crawl..but she's not quite there yet. 

She hasn't gained any weight in the last few weeks so she's stayed at 14lbs. She is in 6-9 month clothes but still fits into some 3-6 month dresses. She hasn't been doing so well with her bottles and is only taking around 3 ounces a feed, she's really enjoying her solids though and demolished a cream cheese sandwich yesterday.

We are still waiting to hear back from GOSH, I think there had been a mix up and she wasn't brought up in the cardiologist's last meeting for some reason. We've been told that we should defiantly hear back from them by this Friday. 

Here are some pictures of our princess from the last few weeks:

Don't forget to follow us on Instagram - HarpersHeart14 xxx

Teddy - 2 year update

Finally getting round to writing up Teddy's 2 year update..my baby is now turning into a little boy!

He had a brilliant 2nd Birthday, we took him to the Sealife Centre in Brighton as he loves fish and it was a brilliant day out. Even Harper was mesmerised by all the fish and the pair of them were as good as gold considering it was quite a long day.

Ta Da!

On Brighton beach

Teddy has now started pre school, this is a huge change for us as we are together all the time, he rarely stays away & if he does it's only been because we didn't have a choice. He's been going 3 mornings a week but is struggling to let me leave and has attached himself to one of the nursery staff and doesn't leave her side at all. I'm hoping the more he goes he'll eventually enjoy playing with the other children.

Over the past few weeks we've noticed that he is more interested in Harper (he usually just ignores her) he's wanting to play with her and I've caught him trying to make her laugh a few times. 

He still has a dummy (or 5) and we have noticed that it's starting to affect his speech. When he hasn't got it in he talks really well so we are working on getting rid of them, it's hard as Harper has one and if we take Teddy's away he takes hers instead..maybe we should try and get them both off them?

How did you manage to loose the dummy? Leave a comment below as we are willing to try anything.

XxX

Now we wait...

Harper had an outpatients appointment at Great Ormond Street yesterday, 4 months after we last saw them.

As she's been doing really well growth and development wise I had got my hopes up that we would be told the same as last time..that she was coping fine and they'd leave her a few months again.

This time we saw the cardiologist that had seen us throughout my pregnancy, this was the first time he'd actually met Harper. While they checked her over and after having an ECHO he told us that he was really pleased with her, he thought the weight she'd gained since birth was really good for a baby with a CHD. 

He then said something I wasn't expecting at all - he felt now would be the time for her surgery. In his opinion she is a good weight and he feels there's no need to leave it any longer, she needs it done at some point so why not now.

He explained that he would have to discuss her at a meeting with the rest of the cardiology team and get their opinions too, they might feel its best to wait until she's slightly bigger.

We are now just waiting on a phone call to find out the outcome of the meeting and the plan that they have decided on.

I've never been so scared, I'll be so glad once this part is all over and we can just look forward to the future xxx

Wordless Wednesday