Wednesday 14 January 2015

Now we wait...

Harper had an outpatients appointment at Great Ormond Street yesterday, 4 months after we last saw them.

As she's been doing really well growth and development wise I had got my hopes up that we would be told the same as last time..that she was coping fine and they'd leave her a few months again.

This time we saw the cardiologist that had seen us throughout my pregnancy, this was the first time he'd actually met Harper. While they checked her over and after having an ECHO he told us that he was really pleased with her, he thought the weight she'd gained since birth was really good for a baby with a CHD. 

He then said something I wasn't expecting at all - he felt now would be the time for her surgery. In his opinion she is a good weight and he feels there's no need to leave it any longer, she needs it done at some point so why not now.

He explained that he would have to discuss her at a meeting with the rest of the cardiology team and get their opinions too, they might feel its best to wait until she's slightly bigger.

We are now just waiting on a phone call to find out the outcome of the meeting and the plan that they have decided on.

I've never been so scared, I'll be so glad once this part is all over and we can just look forward to the future xxx


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