Showing posts with label LAI. Show all posts
Showing posts with label LAI. Show all posts

Saturday, 11 October 2014

So proud

Over the last few months Harpers Daddy, Auntie & Uncle have been taking part in different events to raise money for Great Ormond Street.

Although Harper hasn't had any surgery there yet the support they have given us throughout pregnancy and over the last 4 months has been unbelievable. Any concerns I have about Harper they are only a phone call or email away and the cardiologists and nurses that we have seen so far have been nothing but kind and understanding.

Harpers Uncle took part in the 3 peak challenge back in September, climbing the 3 highest mountains in the UK in just 1 weekend, her Auntie took part in the color run in Brighton, something that's completely out of her comfort zone & her Daddy is taking part in the Royal Parks Half Marathon tomorrow. The 3 of them set a target for £2000 which they have manage to reach and pass raising over £2400. 

I am so proud of all of them for what they have done and would like to thank everyone who has donated so far, it means so much to us and I know what it will mean to GOSH.

If you would like to donate you can do via their Just Giving Page https://www.justgiving.com/teams/harpers-heart


Monday, 4 August 2014

Update - 1 Month old

I can't believe Harper is a month old already. It's going far too quickly. She has already outgrown 2 sizes in clothes, and due to the hot weather she's not even worn some of them! 

The health visitor comes home to weigh Harper once a week, as we are unsure whether her immune system works properly they felt it best if she was kept away from baby clinics. They are really pleased with how she's doing, she now weighs 7lb 13oz and has jumped up 2 centiles in height! No wonder her sleepsuits don't fit.

She's still feeding every 3 hours during the day but seems to be more settled and go longer between feeds during the night. We've noticed over the past couple of weeks that she's had episodes of crying in pain that can last ages, we think she may have silent reflux as Teddy suffered with it although Ted would refuse his bottles - Harper doesn't and is taking around 4 ounces per feed.

We have our first appointment through for GOSH - 13th August, I'm dreading it as the next date we will get from them will be for her heart surgery. Even though I've known for the last 6 months that she needs it done I still feel so unprepared, I think I'll be a wreck once that date comes through. 

I'm so grateful for how well she's doing though, sometimes I forget there's anything wrong with her as she seems no different to a heart healthy baby. 

We've planned to go away for a few weeks during the summer holidays, it will be Harpers first trip away :).





XxX